As I get older I've begun to notice that life rarely comes at us at an even pace, a smooth series of events that we can handle as they march toward us in orderly succession. I've learned instead that life seems to happen in chaotic bursts, sudden explosions of reality that, good or bad, rain upon us like machine gun fire interspersed by brief periods of uneasy peace.
My thirteen year old daughter has suffered from epilepsy for seven years. After truck-loads of medicine and a small army of doctors from multiple disciplines, we have arrived at the truth that her only natural hope is surgery. So this coming Tuesday morning, June 14th, my only daughter is going to the local children's hospital to have both sides of her skull cut open and parts of her brain examined, monitered, then excised.
Now I know that thousands of children and parents have walked down this path before and come out far better for it. I know that I should be grateful that things are not worse than they are. I know that I should be counting my blessings. As a rabbi I am reminded, also, that God is near, that we are not going through this alone, and that everything will eventually work out for His higher good purposes and will. I know all of these things are true.
But I'm still scared. Is that wrong?
I'm scared that things may not go as smoothly as they should. I'm scared she may die, or have a stroke, or become profoundly disabled. I'm scared that the surgery may make her already violent seizures worse. I'm scared that her follow-up care may be compromised because of our impending move to Kansas. I'm scared that the cost her care may spiral rapidly out of control and swallow our family financially.
The current religious climate in Western culture often dictates that we should not be people of fear and, to an extant, that is true. I firmly believe that we should never let fear become either our sole or primary motivation for anything. I'm also learning, though, that fear is a reality with which we all must cope, a companion that, at inadvertent (and usually inconvenient) times crops up and demands our attention. I'm learning that God will always help us deal with fear but He may not always take it away.
I must go now. I'll keep you posted.
Troy, my heart is with you and your wonderful family. I know the fear and I hope that God does give you the peace you need to get through this. I pray that everything will go okay and that you receive great news. Please keep me updated and let me know about your move to Kansas. We love you guys! Love, Michelle and Haylee
ReplyDeleteWir beten für Dich und deine Familie!
ReplyDeleteDie Furcht geht nicht immer gleich weg, aber der Herr ist in deiner Furcht. Sein Geist wird dir helfen und dich dort abholen wo du stehst. Du bist ein Vater und ein Vater liebt sein Kind, es ist völlig normal dass wir uns um unsere Kinder sorgen. Aber sein Wort sagt: Perfekte Liebe treibt die Furcht aus. Wenn du dich an ihn fest hälst, dann wird die Furcht gehen. Vater unser im Himmel, geheiligt werde dein Name dein Reich komme dein Wille geschehe........ Sei getröstet! Sylvia
Praying...may the prayers from all sending them winging to G-d indeed reach His ears...may He hold all of you even closer than ever before, may blessings rain upon y'all w/heart-strengthening and comforting and may all go well with G-d in attendance prior to, during, and after surgery, during upcoming move/settling in period and after. much love and gentle hugs to all. linda
ReplyDeleteTroy...I know that when I almost lost my son...I was scared and a word came to me CHAZAK, CHAZAK, v’NIT’CHAZEK . Be strong, be strong, and may we be strengthened! Do Not Be Afraid...Just sit with the Beloved this evening and open up His Word and study DO NOT BE AFRAID! His Plan will Prevail! Let Him carry during this time...My Friend...Shalom Shelly
ReplyDelete